I sat thinking today about my girls diagnosis.
It is almost 5 years since we had the call.
The call that I thought would change our lives forever.
I thought that when my girl received a formal diagnosis of Autism that everything would be different.
I thought the stares and comments about behaviour would stop.
I thought the judgement of my parenting would stop.
I thought help and support would come rolling in.
I thought I would no longer be alone.
I was thrown into a tornado of questions and didn’t know how to get out.
I was given a book about ‘what happens next’ and left with a diagnosis and a child I was still beginning to understand.
5 years is a long time.
The biggest change has been to me.
I have gone from this quiet, ‘agree to everything Mum’, to a ‘pro active fight for everything Mum’.
Because there isn’t anyone else who can do it for you.
There isn’t anyone who knows your child more than you.
I thought diagnosis would open the doors for help and support that I needed.
I didn’t get that.
What I did get was help and support from other parents in the same situation.
Parents who know and understand.
I am no longer alone.
If I have learnt one thing since diagnosis it is to seek help from parent led support groups, parents of children who are in the same boat.
Accept the help. Listen to the advice.
5 years down the line you could be that parent a newly diagnosed family rely on.