Summer holidays.

Summer is here, the school holidays have arrived, 47 days off, lots of time to unwind, Relief from the stress of the morning school run, Dealing with anxiety everyday is not fun. 47 days of my children at home with each other, I am hoping and praying my girls nice to her brother, Plenty of…… Continue reading Summer holidays.

I remember…

I don’t remember her first day of school. The year passed by in a blur of upset, stress and guilt. I remember her being held as I left. I remember her screaming and crying because she didn’t want to stay. I remember crying as I walked away. I remember being told that her sessions were…… Continue reading I remember…

Unfeeling robot?

She’s not unfeeling. She’s not a robot. She doesn’t have a heart made of stone…. …. But, She doesn’t feel what I feel. Does she? I feel everything deep in my heart. Perhaps she just feels it differently. When I am excited I feel my heart skip a beat. When my girl is exciting she…… Continue reading Unfeeling robot?

They and New beginnings.

As we begin our final week of the school year I came across this poem I wrote and I was reminded how hard we fought, and how very lucky we are, that my girl will be starting a school tailored for her needs in September. They. They try to make her normal, They try to…… Continue reading They and New beginnings.

Is it really OK to not be OK?

It is OK to not be OK. I know this…. ….but it isn’t OK…..not really. I am a parent, a carer, I have to be OK. I am a special needs Mum, I have to be OK. I have to be strong, I have to always be OK. I am not OK. I can’t ever…… Continue reading Is it really OK to not be OK?

Hidden Disability; If I grew a third hand.

If it so happened I grew a third hand, I’d have a disability you’d all understand, I wouldn’t need to explain, or put up a fight, Or argue why I think the diagnosis is right. It would be there, on display, for all to see, Confirmation of how things are different for me, But because…… Continue reading Hidden Disability; If I grew a third hand.

The sunshine.5

Sunshine brings summer days out, Sunshine means crowded, busy places. Sunshine brings long, light days, Sunshine means confusion at bedtimes. Sunshine brings warmth to our skin, Sunshine means touch and sticky suncream. Sunshine brings bright lights, Sunshine means a sensory meltdown. Sunshine brings children out to play, Sunshine means too much noise. Sunshine brings long…… Continue reading The sunshine.5