Middleness. Is this a thing? Is this why we have to fight for absolutely everything? Because she doesn’t have severe Autism, because she masks in school, because she conforms to school rules, because she is performing at average levels with her peers, this makes her ok? Is middleness nothing? Does her Autism mean nothing? Is…… Continue reading Middleness?

Parent Carer? (Carers Week).

Am I a stay at home mum or a parent carer? ….or both? Where does it differ? Where does one move to the other? It is complicated and hard to understand. I am a stay at home Mum. I am a parent Carer It is Carers Week here in the UK. A week dedicated to…… Continue reading Parent Carer? (Carers Week).

We are all on the spectrum..

Everyone is a little Autistic, everyone is somewhere on the spectrum…. I hate this. I hear it so much. …..so much. People normally say it once I tell them that my child has Autism. It makes me cross, it makes me feel like they are not understanding my child has an additional need. Like Autism…… Continue reading We are all on the spectrum..

5 years!

5 years ago today a group of professionals sat around a table and decided my 5 year old girl was on the Autism Spectrum. She met 10/12 of the criteria and was diagnosed with Childhood Autism. I will never forget that day. A day of bitter sweet emotions. I wasn’t shocked, I wasn’t sad, I…… Continue reading 5 years!

Should I tell?

As I watched my child today I wondered if people can tell that she has Autism. I wondered if anyone can tell she is different. Do other people see what I see? Have I made the right decisions for her? To tell people your child is on the Autistic Spectrum or not? Should I have?…… Continue reading Should I tell?

It will be ok.

When all is quiet and I get a moment alone, I think of my girl, how much she has grown, How much has changed, it was harder back then, I cannot believe that she is already ten! The visions I had when she was first diagnosed, How I feared her to be so different to…… Continue reading It will be ok.

That ‘A’ word.

The ‘A’ Word. That ‘A’ word. Anxious. Afraid. Development not acclerating. Ability, attention, achievement- reduced. Awake all night. Abnormal? Answers needed. Action taken. Assessment, after assessment, after assessment. Analysis. Approaching academics, asking for advice. Answers needed. A diagnosis given. Abbreviations, acronyms….reports. Agigtated. Angry? Adjustment needed. Time to absorb. Acceptance. Approval? Admission…… Announcements. Awareness. Advocacy. The…… Continue reading That ‘A’ word.