Emergency.

One of the most frightening places to end up with your child is A&E. Not only scary because your child needs emergency medical attention, but because of the huge change in routine… …visits to A&E are never planned. They are always full of people. Noisy, bright, busy. Waiting, waiting. So much waiting. A nightmare for…… Continue reading Emergency.

Changes….

My girl is starting a new medication tonight. It is to help manage her pain long term. Whilst I am happy that, potentially, we can make her feel better, I am scared. Anything new with my girl fills me with dread. My girl took the medicine and is excited that it might work….. …..then was…… Continue reading Changes….

6 weeks?

To whom it may concern, I am writing this at my wits end. I have had a hard few days (weeks) and I feel that most of it is your fault. You don’t know me but I need to explain some things to you. You have made the decision to make the school summer holidays…… Continue reading 6 weeks?

Windows.

Windows. Transparent panels looking out on the world that we cannot join. Watching children play outside on their scooters and bikes. Seeing parents putting their children into cars in preparation for days out. Listening to the tinkling of an ice cream van and hoping it doesn’t come down our road. Watching a parent send their…… Continue reading Windows.

Keep it simple.

School has finished for the holidays but I don’t feel one bit Christmassy. These past few weeks have been so busy that time has just flown. My poor husband being poorly, and then my girl falling badly and dislocating her kneecap, has meant that all my attention has been focused on them. Poor Christmas has…… Continue reading Keep it simple.

Illness.

One of the hardest things about being a parent is seeing your child ill. What if seeing it was as much information as you got because your child couldn’t communicate it to you? Harder, because you don’t know how to help. “Oh, aren’t they brave?” “They didn’t make a fuss”, “They never mentioned they felt…… Continue reading Illness.

Does our puppy hold the key?

Our puppy has opened up a part of my girl I have never seen. Does she have the key to Autisms secrets? Weighing only a tiny 1.3kg, and at the length of my hand, she has made a massive impact on our lives already. She has filled a hole we didn’t know we had. She…… Continue reading Does our puppy hold the key?