Hangman. My girl may not be able to verbalise her emotions but she can make Mr HangMan let me know that she was annoyed at me for not guessing the word correctly! Ok, so maybe not entirely appropriate, but when you have a child who struggles so much with her feelings, I think I can…… Continue reading Hangman.

Growing up.

I’m grumpy. My girl is grumpy…. …and angry….and everything I would expect of a pre teen. But that’s just it. Inside the layers of Autism, Sensory Processing Disorder, Ehlers Danlos Syndrome, Visual Processing Disorder, sleep difficulties and various other diagnosis’, is a young girl. A young girl developing into a young lady. Hormones, back chat,…… Continue reading Growing up.

I remember…

I don’t remember her first day of school. The year passed by in a blur of upset, stress and guilt. I remember her being held as I left. I remember her screaming and crying because she didn’t want to stay. I remember crying as I walked away. I remember being told that her sessions were…… Continue reading I remember…

Unfeeling robot?

She’s not unfeeling. She’s not a robot. She doesn’t have a heart made of stone…. …. But, She doesn’t feel what I feel. Does she? I feel everything deep in my heart. Perhaps she just feels it differently. When I am excited I feel my heart skip a beat. When my girl is exciting she…… Continue reading Unfeeling robot?

The NHS.

We moan about it everyday, “There’s too much waiting,” we all say, “Where’s my appointment? I’ve been missed” “I don’t want to be placed on another list,” “There are not enough doctors in this place,” “They’ve given priority to another case,” “A box of tablets, is that all you can do?” “Suppose I’ll have to…… Continue reading The NHS.

The long nights.

The nights your child wakes before you have got to bed. That sinking feeling when you know you will be sat up all night. Sat there fighting sleep, needing sleep, watching your child full of energy. Knowing that you need to be awake and alert to watch their every move. Whispering to your child to…… Continue reading The long nights.

Autism….a poem.

It must be Autism; When they are running around flapping, And you hear incessant foot tapping, When the behaviour looks out of place, And the look of disgust on everyones face. It must be Autism; When people never listen, When your head hurts because you’re so tired, And at 2am your child is still wired,…… Continue reading Autism….a poem.