That knot…..

Since my girl started her new school so many people have asked how she is getting on. Everyday when I take my boy to school, her old teachers, TAs, parents of children I know, parents of children I don’t know, ask about her. They care…… …..for years I thought they didn’t. When she was at…… Continue reading That knot…..

Work?

“You can go back to work now your girl goes to school.” A sentance more than one person has said to me this week. I don’t like it. I don’t like the assumption that now my girl is going to school, that everything has magically changed. The truth is; my girl has not changed, she…… Continue reading Work?

A day with my boy.

A day with my boy. A day of many emotions. A day of realisation. The day my eyes were opened. Everyday I see parents out with their children. On bikes, scooters, walking…. Together. Relaxed, smiling, giggling. I feel sadness. Jealousy. A ‘normal’ everyday occurence for everyone else….. ……not for us. We can’t just go out.…… Continue reading A day with my boy.

The NHS.

We moan about it everyday, “There’s too much waiting,” we all say, “Where’s my appointment? I’ve been missed” “I don’t want to be placed on another list,” “There are not enough doctors in this place,” “They’ve given priority to another case,” “A box of tablets, is that all you can do?” “Suppose I’ll have to…… Continue reading The NHS.

Carers week 2018.

Am I a stay at home mum or a parent carer? ….or both? Where does it differ? When does one move on to the other? It is complicated and hard to understand. I am a stay at home Mum. I am a parent Carer. It is Carers Week here in the UK. A week dedicated…… Continue reading Carers week 2018.

Our favourite place.

Love is a place, a place that I know, A place we belong, not just where we go, A place we feel wanted, a place we fit in, A place we feel happy, where friendships begin. A place that can turn sad faces to smiles, A place where every second is worthwhile, A place where…… Continue reading Our favourite place.

Alone.

Alone in a room, but people are there, sat down on the floor, I’m up on a chair, watching them playing, a game in a team, I’m staring at them, trying not to be seen, wanting to ask them, if i can join in, sitting on my hands, trying not to stim, rocking to soothe…… Continue reading Alone.