School tomorrow…

T’was the night before school in Our Autism house, Anxiety was affecting everyone, even my girls toy mouse, She’s in a bit of a state, but she does want to go, This school thing is scary, this is all I know; The school clothes are too itchy, she doesn’t want to do her hair, She…… Continue reading School tomorrow…

Live for today.

Some days I look at my girl and wonder what her future holds. I think about whether she will be able to live independently. If she will marry, have a family. If her health problems will allow her to live her life as she wants to. Whether she will need her wheelchair forever. I wonder…… Continue reading Live for today.

I just want to be a Mum.

If I knew then, what I knew now, Would that make me a better Mum somehow? If I knew the diagnosis, before she was born, If I could have, possibly, been warned. Not warned of the Autism, but of all the fights, Just to get access to her basic rights, An appointment, a specialist, the…… Continue reading I just want to be a Mum.

Autism and surfing therapy.

The sand was soft, the sky was clear, The beach awash with volunteers, The waves were calling out their names, As down the path the people came, Armed with smiles and excited screams, To do the thing they’d often dreamed, To feel the sea and ride the waves, No disability would hold you back today.…… Continue reading Autism and surfing therapy.

So very tired.

I’m tired of always having to fight, I’m tired of being the one to put things right, I’m tired of always having to explain, I’m tired of repeating myself over again, I’m tired of teaching people who should know better, I’m tired of writing emails and letters, I’m tired of my words falling on deaf…… Continue reading So very tired.

Fathers Day.

A thank you note to ‘Our Autism’ Dad. Thank you for always being there for us, Always. Without question. Thank you for working on very little sleep, Despite your apparent exhaustion, Thank you for being there in the early hours, When all you need is sleep, Thank you for answering your phone every 5 minutes,…… Continue reading Fathers Day.

There’s always good.

Some days it pays, To raise your head to the sky, Fill your lungs with fresh air, Watch the branches up high, Clear your mind of the stress, Watch your worries float away, Be thankful and happy, You’ve got through the day. Not everyday is a good day, But there is something good in everyday.…… Continue reading There’s always good.