It is Mr and Mrs ‘Our Autisms’ wedding anniversary today. We have been married for 10 years. …..and so much has happened in those 10 years! It has not been easy. I love my husband with 100% of my heart, but sometimes the stress, strain and sleep deprivation that comes with having a child with…… Continue reading 10 years!
“You can go back to work now your girl goes to school.” A sentance more than one person has said to me this week. I don’t like it. I don’t like the assumption that now my girl is going to school, that everything has magically changed. The truth is; my girl has not changed, she…… Continue reading Work?
It must be Autism; When they are running around flapping, And you hear incessant foot tapping, When the behaviour looks out of place, And the look of disgust on everyones face. It must be Autism; When people never listen, When your head hurts because you’re so tired, And at 2am your child is still wired,…… Continue reading Autism….a poem.
I was so reluctant to give my girl a mobile phone. Turns out it may have just been the breakthrough we needed. My girl; who cannot/will not tell us when she is in pain, replied to my message as seen in the picture below. Amazing. Isn’t technology amazing. My girl may have found her voice.
Some days I can’t do it. I just can’t. The shouting, the demands, the behaviours…… …the constant everything, I just can’t do it. I want to shout, scream, tell her to go to her room. I want it to stop. I want her to listen, to do as I ask. I want her to tell…… Continue reading The darks days.
What if those who are supposed to be close to you, aren’t? If those who were supposed to understand, don’t? Didn’t want to? Sitting on my Autism Titanic I see little boats trundle by. They wave at me, because they have to. That’s the way it works; all boats wave to each other. A big…… Continue reading Sinking the Autism Titanic?
If everything was orange, Or everything was green, You’d think the world we live in now Was the strangest thing you’d seen. Imagine it all one colour, Every single thing you see, The leaves, the grass, the houses, the sky, Even you and me. You’d want to have something different, To have shoes or lips…… Continue reading If everything was orange….