Just when you think sleep can’t get any worse Mr Weather Man pulls a heatwave out of his bag! My girl has Autism and Sensory Processing Disorder. This can manifest in several ways. Today it showed itself by illustrating my girls difficulty with temperature regulation. Children, and adults, with Autism often have problems with temperature…… Continue reading Thanks Mr Weather Man!
Am I a stay at home mum or a parent carer? ….or both? Where does it differ? Where does one move to the other? It is complicated and hard to understand. I am a stay at home Mum. I am a parent Carer It is Carers Week here in the UK. A week dedicated to…… Continue reading Parent Carer? (Carers Week).
Looking for a job! Must be within school hours. Must allow for lateness due to childs unpredictibility in mornings. Cannot work evenings or school holidays. Must allow frequents days off for childs hospital appointments. Must allow use of mobile phone to keep in touch with school. Must allow personal use of phone/email to organise, plan…… Continue reading Looking for a job!
Today has been hard. Really hard. The change in routine due to no school and our upcoming holiday has introduced some very challenging behaviours. It’s a viscous cycle for me. ….for me. The selfish one. The one who feels the need to talk about how Autism is hard for me….. I live in a loop.…… Continue reading Woe be me.
There are days where the only way to get through is to plaster on a fake smile over gritted teeth. There are days where the only way to see through the darkness is to block out your surroundings and look to the sky. There are days when the the sound of the birds is what…… Continue reading There are days.
My aim today? To be positive. …..about a bad day. It can be done, can’t it? Sometimes I feel it can’t, most days I feel I can’t. I don’t mean to be so negative but when you see your child struggle and meltdown daily over the easiest of tasks, you get stuck in negativity. Everything…… Continue reading Where’s my positivity?
Awake. Again. Clock ticking. Girl screaming. Eyes closing. Head hurting. House awake. With the noise she makes. Floorboards creaking. No one sleeping. Our Autism awake. Tea break. Sleep deprivation. No motivation. Need my bed. Resit my head. Awake all night. Sun brings light. Feeling drained. Tonight we’ll do it again.