Tired. Tried.

Tried….Tired. Trying….Tiring. I don’t think it is a coincidence that those two words look and sound very similar. Today has been both. My girl has been trying today…. …mostly our patience. We are all tired. Holidays do that to us all. Tired because we can relax a little, or tired because we are out and…… Continue reading Tired. Tried.

The stress.

The stress. Pulling me, pushing me. Giving in, giving up? Screwed up face, jaw clenched tight. Waiting. Always waiting. For the storm to come, for the storm to pass. Exhaustion carrying my tired body. Mental exhaustion. Mind fatigue. Tears fall inwardly, they can’t see. Stoic face. Holding it all together. Whilst crumbling, inside I’m crumbling.…… Continue reading The stress.

Parent relationships.

Being parents is hard. Being parents of a child with additional needs is hard. To be in a relationship whilst being a carer takes a lot of patience… …patience that not all relationships have. Parenting a child with additional needs takes an awful lot of your time. As a result you don’t get to spend…… Continue reading Parent relationships.

Full moon.

Full moon I see you in the sky, Staring down at us like a spy, Making sure my child’s awake, All night long, until daybreak, Behaviour waning all week long, Waiting for you to come along, Increasing energy to the max, No time to sit down and relax, Easy to anger, easy to cry, Increased…… Continue reading Full moon.

Coping?

Coping. Am I? Is anyone? Why is not coping seen as a weakness? At the moment I don’t feel like I am coping, but I am. The dictionary defines coping as “to face and deal with responsibilities” and “to deal successfully with a difficult situation”. Which I do…..because I have to. It is part of…… Continue reading Coping?

Thanks Mr Weather Man!

Just when you think sleep can’t get any worse Mr Weather Man pulls a heatwave out of his bag! ​My girl has Autism and Sensory Processing Disorder. This can manifest in several ways. Today it showed itself by illustrating my girls difficulty with temperature regulation. Children, and adults, with Autism often have problems with temperature…… Continue reading Thanks Mr Weather Man!

Parent Carer? (Carers Week).

Am I a stay at home mum or a parent carer? ….or both? Where does it differ? Where does one move to the other? It is complicated and hard to understand. I am a stay at home Mum. I am a parent Carer It is Carers Week here in the UK. A week dedicated to…… Continue reading Parent Carer? (Carers Week).