They and New beginnings.

As we begin our final week of the school year I came across this poem I wrote and I was reminded how hard we fought, and how very lucky we are, that my girl will be starting a school tailored for her needs in September. They. They try to make her normal, They try to…… Continue reading They and New beginnings.

Is it really OK to not be OK?

It is OK to not be OK. I know this…. ….but it isn’t OK…..not really. I am a parent, a carer, I have to be OK. I am a special needs Mum, I have to be OK. I have to be strong, I have to always be OK. I am not OK. I can’t ever…… Continue reading Is it really OK to not be OK?

Hidden Disability; If I grew a third hand.

If it so happened I grew a third hand, I’d have a disability you’d all understand, I wouldn’t need to explain, or put up a fight, Or argue why I think the diagnosis is right. It would be there, on display, for all to see, Confirmation of how things are different for me, But because…… Continue reading Hidden Disability; If I grew a third hand.

The sunshine.5

Sunshine brings summer days out, Sunshine means crowded, busy places. Sunshine brings long, light days, Sunshine means confusion at bedtimes. Sunshine brings warmth to our skin, Sunshine means touch and sticky suncream. Sunshine brings bright lights, Sunshine means a sensory meltdown. Sunshine brings children out to play, Sunshine means too much noise. Sunshine brings long…… Continue reading The sunshine.5

New school. Transition Day.

Today was my girls transition day at her new secondary school. A taster day of the years to come. I was going to write about how she coped. I was going to talk about the anxiety leading up to this day. I was going to tell you how happy, but completely exhausted, she was when…… Continue reading New school. Transition Day.

The NHS.

We moan about it everyday, “There’s too much waiting,” we all say, “Where’s my appointment? I’ve been missed” “I don’t want to be placed on another list,” “There are not enough doctors in this place,” “They’ve given priority to another case,” “A box of tablets, is that all you can do?” “Suppose I’ll have to…… Continue reading The NHS.

Inclusion, disabilty, Autism and beaches.

Dear Par Beach, There are lots of little joys in life that we take for granted. Things we do each day without even thinking about it. Things that some people are physically unable to do. Take going to the beach for example; Walking barefoot over warm, silky sand. Following the tide as it ebbs and…… Continue reading Inclusion, disabilty, Autism and beaches.