A thank you note to ‘Our Autism’ Dad. Thank you for always being there for us, Always. Without question. Thank you for working on very little sleep, Despite your apparent exhaustion, Thank you for being there in the early hours, When all you need is sleep, Thank you for answering your phone every 5 minutes,…… Continue reading Thank you ‘Our Autism’ Dad.
Another piece of my heart is broken. It hurts…..but I know why. I cry, but I know why I am crying. My girl saw me cry but didn’t seem to realise, or even notice. I shout, I scream; I’m angry, but I understand why I feel that way. I sob into my pillow when I…… Continue reading Autism and grieving….
Imagine having Autism and Sensory Processing Disorder. Imagine hating having anything touching your skin. Imagine hating being touched. Imagine not being able to sleep because it feels different. Imagine not really understanding the rationale behind the procedure. ….Imagine having to wear a 24 hour ecg monitor. Wish me luck!!! Wish my girl luck! My poor…… Continue reading Autism and ECG monitoring.
Am I a stay at home mum or a parent carer? ….or both? Where does it differ? When does one move on to the other? It is complicated and hard to understand. I am a stay at home Mum. I am a parent Carer. It is Carers Week here in the UK. A week dedicated…… Continue reading Carers week 2018.
Some nights I can’t sleep. I just lie in bed and think…. ……overthink. I think about Autism and what it means to us. About what makes us different from other families. About what it means to have, eat, sleep and breathe Autism. I lie there and think about how hard it can be. I lie…… Continue reading Autism sleepless anxiety..
My girl struggles with communication, like many who have Autism. Communication doesn’t always mean talking. Today it meant writing acronyms to describe her feelings towards school, english and maths.
Love is a place, a place that I know, A place we belong, not just where we go, A place we feel wanted, a place we fit in, A place we feel happy, where friendships begin. A place that can turn sad faces to smiles, A place where every second is worthwhile, A place where…… Continue reading Our favourite place.